People with ALS in the U.S. spend over $47,000 for medical care in the year after diagnosis, more than 3.5 times the average ...

Amyotrophic lateral sclerosis (ALS) is a fatally progressive degenerative disease, with many patients succumbing to the condition within 3 to 5 years after diagnosis. It is a rare, orphan disease with ...

Jaime Basnett is a nurse practitioner and has been with MU Health Care since 1998, first starting out as a bedside nurse. In early April 2024, Basnett became the ALS research program manager with ...

Testing showed that Gonzalez’ ALS was caused by a mutation in the SOD1 gene (Super Oxide Dismutase 1), which meant she was eligible for a relatively new, FDA-approved medication called Qalsody.

ALS patients received better care if they were treated by a neurologist, a new study published in PLOS One has found. But researchers found that Black, older and socially disadvantaged ALS patients ...

Funding aims to bring high quality ALS care closer to home and more accessible for people living with ALS nationwide "Thanks to this transformational gift, we are able to support clinical programs ...

NPR's Juana Summers checks in with Brian Wallach, who has been living with ALS for seven years, and his wife Sandra Abrevaya on their ongoing advocacy for ALS patients, families and caregivers. Last ...

Rob was in his early 40s and in good health when he started losing his balance and slurring his speech. Within a few years, ...

Rick Zbur and his late sister Jackie, who suffered from ALS. Courtesy of Zbur’s office After fourteen years of supporting ALS families, I know firsthand the relentless challenges of living with ALS.

Richmond's 25th annual Walk to Defeat ALS brought together 500 participants on Browns Island, raising over $147,000 to ...

Eric Dane is bringing his real-life experience as someone diagnosed with ALS to work. The 52-year-old actor, who revealed his ...