The 2025 Kingsland grad put his athletic dreams on hold when he was diagnosed with Marfan syndrome at age 14. He had surgery to repair his aorta two years ago, but eventually started playing again.

Your little one is growing taller faster than other children his age. His arms, legs, and fingers are also longer, with a curved sternum. These signs are symptoms of Marfan Syndrome, Mom. Consult a ...

The European Medicines Agency (EMA) has designated allopurinol as the first orphan drug for the treatment of Marfan syndrome, a rare connective tissue disease which as no cure to date. This disease ...