This weekend marks the start of Congenital Heart Defect Awareness Week, a time to highlight a condition that affects about one in 100 babies during pregnancy and can change families’ lives forever.

It said the disease was known as hypoplastic left heart syndrome (HLHS) and any patients with HLHS, the left side of the heart is much smaller than usual and cannot pump enough blood to the body.

“I was terrified that now I was dying, and that my husband and my son would be left by themselves,” Sophie Martin said ...

Six-year-old Emmie Lou Ward from Ashburn, Georgia, was born with hypoplastic left heart syndrome, a rare and fatal defect without immediate surgery. Prenatal diagnosis allowed for staged operations ...